Living with a chronic illness is tough. We've all heard that. But what about the people who are left carrying the brunt around? They are the friends or family who know best how to help the patient as they deal with wheezing and gasping. They are the breathing helpers. These informal carers. And their role is extremely important. Yet many times? They are often overlooked and not given the support they deserve. Such as someone who helps an older person breathe every day as their health declines.  This is a HUGE problem.

But who are these carers and what kind of support they have?  They are always integrated with the family. They are that daughter watching over her parents in the morning as they struggle with that first breath. Or the son spending time and energy to help the older person. They are the ones who sacrifice their time and energy for the health and well being of patients who are constantly run out of breath. Its a harrowing experience. Yet they are a part of life? In the UK, millions take care of those who are living with breathlessness.

First of all, carers have significant needs and many problems. They might be struggling with their role as they watch the sick. . . and yet they are expected to just get on with it. They become frustrated. They get hurt. Their health might become affected.

People do not often think about the quality of life and the struggle of informal carers. But what happens if they become overwhelmed? Who will step in to help both the ailing person and the ancestor doing the heavy lifting. What can we do to support them? Apart from a warm smile and a warm cup of tea what else can they do to support?

We need to think about these informal breathing helpers. We need to make sure that their needs are met. To tackle this problem some programmes have been set up to support carers. But is it possible that we can do more to acknowledge their efforts and sacrifices? There's a need to enhance their well-being and support their needs. Everybody is different. Some will require financial support while others need mental and physical health support.  So next time you hear about these carers, show them the light and thank them.

But are we too late? Have we not done enough? What does it really take to make sure more effective and sustainable care can be provided by carers?

Are Invisible Helpers Getting the Support They Need?

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